Annual Report 2010

Table of Contents
The Mission of ADDPC

1

2

Message from
the Chairperson

3-4

Executive Director Report

5-6

2010 Challenges/Opportunities

7-9

2010 Initiatives

10-13

Partnerships

15-16

Developmental
Disabilities Network		

17

Council Members 2010

19-20

Fiscal Year 2010
Financial Statement

21-22

The Mission of ADDPC
Mission

Values and Beliefs

The Arizona Developmental
Disabilities Planning Council has
established its mission to develop
and support capacity building and
systemic change that increases
inclusion and involvement of
persons with developmental
disabilities in their communities
through the promotion of selfdetermination, independence and
dignity in all aspects of life.

The work of the Arizona
Developmental Disabilities
Planning Council is guided by
these values and beliefs:

Vision
The Vision of the Arizona
Developmental Disabilities
Planning Council is one
community working together
to achieve full inclusion and
participation of persons with
developmental disabilities.

• We believe in, and are passionate
about, the meaningful inclusion
of persons with developmental
disabilities in all aspects of
community life.
• We value diversity in all its forms
and believe that individuals with
developmental disabilities should
be treated with dignity and respect.
• We believe that persons with
developmental disabilities, their
families, and persons who support
them should have the information
and support needed to make
informed decisions about options
available to them.

• We believe that persons with
developmental disabilities
should have the opportunity to
make choices about services,
supports, and other matters
that affect their quality of life.
• We are passionate about the
meaningful inclusion of persons
with developmental disabilities
in all aspects of community life.
• We believe that our work
should be guided by the results
that we want to see.
• We believe that we are
accountable to persons with
developmental disabilities,
their families, others who support
them, and those who support
our work.

2

Message from the Chairperson
Will Humble

As I reflect back on 2010 and the
accomplishments of the Arizona
Developmental Disabilities
Planning Council (ADDPC),
I realize that while the year
was challenging, it was a very
successful period in laying a
foundation for Council activities
and preparing new pathways for
the future. The creation of the
ADDPC in the fall of 2009 brought
with it a mixture of new faces, old
allies, opportunities, and a sense
of urgency, as the Council sought
to define itself as an organization
dedicated to serving persons
with developmental disabilities
and their families. Under the
astute leadership of Chairperson
Steve Tully, the Council forged

3

ahead with hiring an Executive
Director and revising the State
Plan carried forward from the
previous Council. Armed with the
tools of leadership and the road
map of the State Plan, activities
began in earnest, with the first
round of grant awards occurring
in October 2010. In January
of 2011 after the departure of
Steve Tully, I was appointed as
the new Chairperson, and soon
fully understood the hard work
and commitment Steve had
dedicated to the ADDPC. The
vision that was established in
2010 certainly prepared the way
for us to move forward with an
aggressive agenda in our efforts
to strengthen existing resources,

increase capacity for inclusion
and bring about necessary
change that will result in greater
access to full participation in
community life.
As a parent looking to the
future, I sometimes become
apprehensive, wondering what
lies ahead as my child copes
with a disability – will life be a
struggle, strewn with pitfalls
and obstacles blocking the
way toward independence and
happiness, or will options surge
forward, offering roadways to
success, that when taken lead
to achievement of a job, a home
and being part of the community?
Although only time will tell, I feel

proud to be a part of the Council,
which I perceive as a lifeline
anchored to the principles of
advocacy, support and inclusion.
I believe the Council can, will
and has made a difference. The
Council looks forward to your
participation and contributions as
we move forward in completing a
successful 2011!

I feel proud to
be a part of the
Council, which
I perceive as a
lifeline anchored
to the principles
of advocacy,
support and
inclusion.

Will Humble
Chairperson

4

Executive Director Report
Larry Clausen

Heraclitus once said “Nothing
endures but change”, a
statement that has been borne
out in the 21 months since
Governor Janice K. Brewer,
by Executive Order, created
the Arizona Developmental
Disabilities Planning Council
(ADDPC). The abrupt introduction
occurred as a newly-formed
Council along with new staff
moved forward in its efforts to
continue the work done by the
previous Governor’s Council on
Developmental Disabilities. As
the ADDPC began its first steps
in 2010 toward becoming fully
functional, it began to realize
the truth of an observation
made by Arnold Bennett – “Any

5

change, even change for the
better, is always accompanied
by drawbacks or discomforts”.
Winding our way through the
maze of procurement, grant
solicitation, financial controls,
struggling to build and reconstruct
relationships and learning all the
basics of working with federal
and state governmental agencies
helped the staff and Council
members understand the true
definition of “discomfort”. Yet,
in spite of all the challenges,
accomplishments were achieved.
We reconnected with partners
within the community of persons
with developmental disabilities.
We began to share our voice
on topics related to education,

employment and advocacy.
We developed our Council
self-concept by understanding
ourselves and the people who
we serve. We awarded grants
to seed the way to increased
systemic change in supporting
persons with developmental
disabilities. And most importantly
we developed passion. The
enthusiasm germinating within
Executive Order 2009-08 signed
by the Governor on September 3,
2009, began transforming itself
into tangible work and a desire
to make a difference. As a result,
the ADDPC has begun to see
itself as an organization that can
and will bring about change. We
have a plan to move forward and

look excitedly to the future in
trying new ideas and approaches
bearing in mind the axiom uttered
by Peter Drucker: “The only thing
we know about the future is that it
will be different”.

Yet, in spite of all
the challenges,
accomplishments
were achieved.

Larry Clausen
Executive Director

6

2010 Challenges/Opportunities
The dissolution of the
Governor’s Council on
Developmental Disabilities
in July 2009 resulted in a
period of dormancy in which
Council functions ceased.
Upon creation of the Arizona
Developmental Disabilities
Planning Council (ADDPC) by

7

Executive Order in September
of 2009, a new organization was
born, one that was markedly
different than its predecessor. In
its efforts to move forward and
begin work, the ADDPC faced
challenges and opportunities on
several fronts.

Operations
The members of the new ADDPC
were selected by the Governor
to represent the varied interests
of persons with developmental
disabilities in Arizona, and
included individuals who had
served on the previous Council
along with new members who
received their first exposure to
Council activities. Staff selected
to support the new Council were
comprised of a small group of
three professionals. Hired in
November of 2009, the new
staff ambitiously embarked upon
the learning curve associated
with administering the financial
and program aspects of the
Council while assembling the
history of the previous Council

needed for future planning. Many
opportunities and positive gains
were noted during this time,
resulting from the support and
guidance provided by seasoned
Council members, staff from the
Governor’s Office and technical
assistance provided by the
Administration on Developmental
Disabilities and the National
Association of Councils on
Developmental Disabilities.

Community
Engagement
Alerting previous constituents,
advocates, providers and public
partners to the new ADDPC
became a full-time activity with
considerable time dedicated to

engaging people in discussions
about the ADDPC and learning
about the current themes of
concern that would become the
focus of future projects. The
ADDPC website was expanded
to offer resources and information
to visitors and underscore the
role of the ADDPC as a key
organization in capacity building.
During this period, Council
members were also defining both
their individual and group roles
on the Council, with much of their
insight tempered by increasing
contact with community
representatives at the consumer,
policy and provider levels.

Funding
Due to the dormancy of the
Council in 2009, unspent
grant funds were identified
with obligation dates fast
approaching. The ease of
awarding funds for useful
and measurable projects
was complicated by State
Procurement guidelines and
the need for a competitive
process to occur when
awarding grant dollars. As a
result, developing concepts,
posting grant applications and
reviewing grant proposals
became a lengthy and timeconsuming process. While
a large number of grant
continued on following page...

8

Challenges/Opportunities (cont’d)
applications were received in
2010, many of them did not
conform to grant application
criteria and therefore could not
be funded, leaving additional
dollars to be awarded by
deadline. This resulted in a
good opportunity for the Council
in creating new ideas and
approaches that became reality,
all the while complying with State
Procurement guidelines.

9

Credibility
Entering the developmental
disabilities arena as a new
organization in 2010, the
ADDPC encountered skepticism
on its potential since the
organization was an unknown
entity, unproven in its ability to
assist and support persons with
developmental disabilities. The
ADDPC reacted by immersing
itself into community activities,
whenever possible volunteering
for increased involvement.
The results were positive, with
individuals and organizations
initiating contact with the ADDPC
to learn more about its capabilities
and to request Council
involvement in key activities.

2010 Initiatives
In 2010, the ADDPC implemented
a variety of initiatives to fulfill the
objectives of the 2007-11 Arizona
State Plan:

Employment
Project SEARCH, a nationallyrecognized program designed
to train and support persons in
attaining competitive, integrated
employment, was initiated in
Maricopa County. The program,
spearheaded by the University
of Arizona, Sonoran Center for
Excellence in Developmental
Disabilities (UCEDD), was
designed to duplicate the
successful implementation of
Project SEARCH in Tucson,
which in 2010 involved both high
school students and high school
graduates in job internships,

training and employment.
The ADDPC was also actively
involved in a planning role with
several organizations, including the
Arizona Employment and Disability
Partnership, which utilized the
Medicaid Infrastructure Grant
(MIG) to develop and enhance
employment opportunities for
persons with disabilities; the
Arizona Employers Advisory
Council, which provides training and
support to employers seeking to
diversify their workforce; Untapped
Arizona, a new organization
designed to support employers in
their employment of persons with
disabilities, and “Think Beyond
the Label”, a national campaign
to heighten awareness of how
all disabilities can be integrated
into the workforce. In October of

2010, the ADDPC participated
in the Arizona Employability
Rally held at the State Capitol
to bring together persons with
developmental and other types
of disabilities to share their
experiences with potential
employers, advocates and the
general public.

Education
The ADDPC focused on
community outreach in
2010, emphasizing contact
with parents, students and
professionals to engage
in conversation related to
high school transition, inschool support, and topics of
significance such as Positive
continued on following page...

10

2010 Initiatives (cont’d)
Behavioral Instructional Supports,
an alternative to the use of
restraints and seclusion in the
school setting. Post-Secondary
education emerged as an issue,
with interest among students
seeking to pursue educational
activities after high school
noted as a growing concern.

Housing
The ADDPC awarded two
grants in 2010, both designed
to increase access to
appropriate and affordable
housing for persons with
developmental disabilities.
The first grant provided to the
Native American Disability
Law Center, was centered
on improving policies and
procedures used by the

11

Navajo Housing Authority in
providing housing to persons with
developmental disabilities. The
second grant project, awarded
to the University of Arizona,
Sonoran University Center for
Excellence in Developmental
Disabilities, designed curriculum
and provided training and skill
development to consumers
with developmental disabilities
interested in increasing their
independence by renting or
purchasing a home.

Health Care
The ADDPC approach to health
care also focused on outreach,
attempting to learn of ongoing
issues critical to persons with
developmental disabilities.
During the year several funding

changes were implemented within
Arizona that resulted in access
to health care being diminished,
such as the elimination of
AHCCCS (Medicaid) optional
services, including all aspects of
dental care. In conjunction with
other organizations, including
the Governor’s Advisory Council
on Aging and the Maricopa
County Oral Health Leaders &
Resources, both educational
and advocacy activities were
developed to counter the
negative consequences of
service reduction.

Transportation
In recognizing that transportation
is a necessity to support
community living and access to
employment, education, health

care and social involvement, the
ADDPC gathered information
to provide to consumers and
to use in preparing future
plans for system change and
capacity building. The ADDPC
featured itself as a resource by
posting information related to
transportation issues in Phoenix
and throughout the state on its
website. Conversations were held
with consumers and included
participation in communitybased programs such as the
Maricopa County Association of
Government’s “Transportation
Ambassador Program”. This
organization, representing all of
Maricopa County, met regularly
to review programs, solicit
comments from stakeholders and
implement change.
continued on following page...

12

2010 Initiatives (cont’d)
Advocacy
Advocacy, particularly selfadvocacy, is viewed by the
ADDPC as the cornerstone
for attaining many of the
goals established in the
Developmental Disabilities
Assistance and Bill of Rights
Act of 2000. As a new
organization, the ADDPC
spent considerable time in
2010 building relationships
with self-advocates and
advocacy organizations.
Efforts were focused on
presenting the ADDPC in as
many venues as possible to
ensure that advocates were
aware of the ADDPC and its
interest in strengthening and
building capacity for selfadvocacy in Arizona. ADDPC’s

13

commitment to advocacy was
shared at numerous conferences
and events, often combining
resources with the Arizona
Developmental Disabilities
Network (ADDN) to plan and
implement activities. The
ADDPC also awarded funds
to three projects designed to
promote self-advocacy. The
first program, operated by Pilot
Parents of Southern Arizona,
provided training to participants
in Partners in Policy Making,
a nationally-known program
designed to develop advocacy
skills. The second project,
awarded to Best Buddies of
Arizona, was based in Arizona
high schools and linked students
with developmental disabilities
to student mentors who
collaborated in helping strengthen

communication and other
skills to assist developmentally
disabled students in increasing
their independence. The final
project, coordinated through
the Arizona Center for Disability
Law and the Native American
Disability Law Center, began
work on revising the Arizona
Legal Options Manual, a
publication first produced by
the Arizona Governor’s Council
on Developmental Disabilities.
Because the Manual has been
viewed as an important resource
for families, professionals
and advocates, updating the
publication was seen as an
important step in facilitating
navigation through the complex
legal system.

14

Partnerships
2010 provided an opportunity
for the ADDPC to establish and
broaden its network of affiliates
to facilitate more statewide and
national relationships.

15

•

Arizona Interns-in-Action

•

Governor’s Advisory Council
on Aging

•

Keogh Health Connection

•

Special Olympics Arizona

•

Alzheimer’s Association,
Desert Southwest Chapter

•

Arizona Department of Health
Services, Office for Children
with Special Health Care Needs

•

Maricopa Association of
Governments, Transportation
Ambassador Program

•

Arizona Statewide
Independent Living Council

•

Arizona Bridge to
Independent Living

•

Arizona Department of Education,
Exceptional Student Services

•

Tetra Services

•

•

Linkages, Maricopa County

Pilot Parents of Southern
Arizona

•

Arizona Commission for the
Deaf and Hard of Hearing

•

Just Vote Arizona Disability
Coalition

•

Life Quest

•

Alliance for Full Participation

•

Safeway, Inc.

•

•

United Cerebral Palsy of
Central Arizona

Think College, College Options
for People with Intellectual
Disabilities

•

Arizona Employment and
Disability Partnership,
Arizona Health Care Cost
Containment System

•

Untapped Arizona

•

Maricopa Association of
Governments, Paratransit
Technical Advisory Committee

•

Arizona Commission of Indian
Affairs

•

Cesar Chavez High School,
Laveen, Arizona

•

Native American Disability
Law Center

•

East Valley Committee on Aging

•

Maricopa County Oral Health
Leaders, Advocates and
Resources (MOLAR)

These relationships
were founded on the
principle of involving
all organizations that
shared a common
interest in expanding
the quality of
community living
for persons with
developmental
disabilities in
Arizona.

16

Arizona Developmental Disabilities Network
In 2010, the ADDPC worked
collaboratively with the Arizona
Developmental Disabilities
Network (ADDN). The ADDN
consists of entities identified
within the Developmental
Disabilities Assistance and
Bill of Rights Act of 2000.
Members included the Arizona
Center for Disability Law,
a Protection and Advocacy
organization; the Institute
for Human Development, a
University Center for Excellence
in Developmental Disabilities,
located at Northern Arizona
University, Flagstaff; and the
Sonoran University Center for
Excellence in Developmental
Disabilities, housed at the
University of Arizona, in Tucson.
Together, the ADDN worked on
several projects which included:

17

1.

Publication of annual ADDN
newsletter, Summer, 2010

2.

Development of a “Border
Conference” which occured
in February 2011 in Nogales,
Arizona, with audio simulcast
to Douglas and Sommerton.
The Conference addressed
developmental disabilities topics
including Positive Behavioral
Management Strategies,
Relationships, Boundaries
and Safety Issues, Aging and
Wellness, and Support Giving
to persons with developmental
disabilities.

3.

Collaboration in updating
the Legal Options Manual,
replacing the 2003 edition, set for
publication in 2011.

4.

Coordinating a shared
agenda of public policy topics for
consideration during the 2011
legislative session.

18

Council Members 2010
Stephen W. Tully - Chairperson,
Partner, Gordon & Rees, LLP.
Karla Phillips - Vice-Chairperson,
Education Policy Advisor, Office of
the Governor
John Black - Operations and
Compliance Monitor, Arizona Health
Care Cost Containment System/
Arizona Long Term Care System
Barbara Brent - Assistant
Director, Arizona Department of
Economic Security, Division of
Developmental Disabilities
Susie Cannata - Attorney,
LaSota & Peters

19

Richard Carroll - Executive
Director, Institute for Human
Development, Northern Arizona
University
Colette Chapman - Deputy
Associate Superintendent,
Arizona Department of Education
Leslie Cohen - Director, Sonoran
University Center of Excellence
on Developmental Disabilities,
University of Arizona
Monica Cooper - Self Advocate,
Self Advocacy Coalition of Arizona
David Copins - Self Advocate

David Cutty - President and
Chief Operating Officer, The
Centers for Habilitation
Greg Devorce - Self Advocate
John Eckhardt - Public Member
Joyce Millard Hoie - Executive
Director, Raising Special Kids, Inc.
Will Humble - Director, Arizona
Department of Health Services
Tim Martin - Chief Executive
Officer, Special Olympics Arizona

Charles Ryan - Director, Arizona
Department of Corrections
Elmer Saufkie - Self Advocate
Rosemarie Strout - Parent/
Family Member
Rhonda Webb - Community
Work Incentives Coordinator,
Arizona Bridge to Independent
Living

Coming together
is a beginning;
keeping together
is progress;
working together
is success.
- Henry Ford

Edward Myers - Deputy
Executive Director, Arizona Center
for Disability Law

20

Fiscal Year
2010 Financial
Statement
The Council was awarded
$1,483,202 in 2010. It had
expenditures of $440,928 which
were primarily in the Quality
Assurance Area of Emphasis
and in Operating/Administration.
As the Council continues to form
and rebuild partner relationships,
$1,042,274 in available funds
remain for future projects. The
expenditures reflect the transition
period with Council staff.

21

2010 ADD Expenditures:

22

1740 West Adams Street, Suite 201, Phoenix, AZ 85007
877-665-3176 (Toll Free) • 602-542-8970 (Office)
www.azgovernor.gov/DDPC